Grant Writer for Healthcare Non-Profit
Budget: $250 – $750 USD
I am seeking a skilled and experienced grant writer to help secure foundation grants for my non-profit, which is focused on medical research within the healthcare sector.
https://donorbox.org/events/689308
Key Responsibilities:
- Research and identify suitable foundation grants
- Write compelling grant proposals
- Help increase funding for our medical research initiatives
Ideal Skills and Experience:
- Proven track record in writing successful grant proposals
- Strong understanding of the healthcare sector, particularly medical research
- Excellent research and writing skills
- Experience working with non-profit organizations
- Ability to meet deadlines and work independently
The Problem?
Lack of Medical Help for Patients: Before COVID-19, the Mayo Clinic estimated there were over 3 - 6 million patients in the US alone with Dysautonomia presenting as Orthostatic Intolerance(OI). The Mayo Clinic also estimates that 1 in 100 teenagers suffers from Postural Orthostatic Tachycardia Syndrome (POTS) alone [1]. Many estimates suggest that this number has likely doubled since the pandemic. However, there are only 61 physicians certified in the Neurology subspecialty "Autonomic Disorders," accredited by the United Council of Neurologic Subspecialties (UCNS) [2]. In pediatrics, the majority of specialty care has fallen to pediatric cardiologists specializing in electrophysiology, but the treatment plans are often limited in scope and subsequently handed over to primary care providers who may not be adequately equipped to manage these complex cases [3].
Lack of Reliable Education for Primary Care Physicians: While patients can receive an accurate diagnosis from a specialist, they are often referred back to their primary care providers, who may lack the necessary knowledge and resources to manage these patients effectively. This lack of understanding often leads to patients feeling dismissed or invalidated in their disease. Over 25% of these patients may go on to become completely disabled without appropriate help [4, 5].
High Total Cost of Care: Patients with Dysautonomia can see as many as 70 physicians without receiving the help they need (Michelle's Story), leading to expensive and often repetitive medical workups without answers [6]. This inefficiency not only burdens the healthcare system but also exacerbates the suffering of the patient (Ally's Story).
Lack of Reliable Pediatric Research to Direct Primary Clinical Care: Current recommendations for managing Dysautonomia or Orthostatic Intolerance (OI) disorders, such as increasing salt and fluid intake, using compression garments, and exercising, only help a minority of patients. There is a significant lack of funding for specific pediatric research in this area, which limits the development of more effective treatments [7, 8].
PCARES's Mission is 3 Fold:
Promote and Fund Clinical Pediatric Research: We aim to advance the care of pediatric and young adult patients by supporting research in autonomic medicine that enhances the knowledge and tools available to primary care physicians who provide clinical care.
Primary Care Provider Education and Community: We will focus on expanding the delivery of quality CME content, UofU "POTS and Beyond" Conference, by developing online streaming content, and producing clinical care-focused educational materials specifically for primary care providers. This will equip primary care providers with the resources they need when patients are referred back to them for autonomic disorders management by specialist. Develop PCARES.org for the delivery of CME education and resources. All benefit attendees will receive a future link through PCARES and be able to view the 2024 "POTS and Beyond" educational content.
Practice Solution: We are committed to ensuring the viability of primary care clinics, enabling them to effectively support their patients who suffer from autonomic disorders.
Procare Medical Non-profit is a 501(c)3 fiscal sponsor of the benefit, 100% of all donations are tax deductible and will be granted to PCARES. Other generous sponsors who have made this organization and benefit possible include the University of Utah Autonomic Neurology Clinic, Granger Medical Clinic, and Parsons Behle & Latimer.
https://donorbox.org/events/689308
Key Responsibilities:
- Research and identify suitable foundation grants
- Write compelling grant proposals
- Help increase funding for our medical research initiatives
Ideal Skills and Experience:
- Proven track record in writing successful grant proposals
- Strong understanding of the healthcare sector, particularly medical research
- Excellent research and writing skills
- Experience working with non-profit organizations
- Ability to meet deadlines and work independently
The Problem?
Lack of Medical Help for Patients: Before COVID-19, the Mayo Clinic estimated there were over 3 - 6 million patients in the US alone with Dysautonomia presenting as Orthostatic Intolerance(OI). The Mayo Clinic also estimates that 1 in 100 teenagers suffers from Postural Orthostatic Tachycardia Syndrome (POTS) alone [1]. Many estimates suggest that this number has likely doubled since the pandemic. However, there are only 61 physicians certified in the Neurology subspecialty "Autonomic Disorders," accredited by the United Council of Neurologic Subspecialties (UCNS) [2]. In pediatrics, the majority of specialty care has fallen to pediatric cardiologists specializing in electrophysiology, but the treatment plans are often limited in scope and subsequently handed over to primary care providers who may not be adequately equipped to manage these complex cases [3].
Lack of Reliable Education for Primary Care Physicians: While patients can receive an accurate diagnosis from a specialist, they are often referred back to their primary care providers, who may lack the necessary knowledge and resources to manage these patients effectively. This lack of understanding often leads to patients feeling dismissed or invalidated in their disease. Over 25% of these patients may go on to become completely disabled without appropriate help [4, 5].
High Total Cost of Care: Patients with Dysautonomia can see as many as 70 physicians without receiving the help they need (Michelle's Story), leading to expensive and often repetitive medical workups without answers [6]. This inefficiency not only burdens the healthcare system but also exacerbates the suffering of the patient (Ally's Story).
Lack of Reliable Pediatric Research to Direct Primary Clinical Care: Current recommendations for managing Dysautonomia or Orthostatic Intolerance (OI) disorders, such as increasing salt and fluid intake, using compression garments, and exercising, only help a minority of patients. There is a significant lack of funding for specific pediatric research in this area, which limits the development of more effective treatments [7, 8].
PCARES's Mission is 3 Fold:
Promote and Fund Clinical Pediatric Research: We aim to advance the care of pediatric and young adult patients by supporting research in autonomic medicine that enhances the knowledge and tools available to primary care physicians who provide clinical care.
Primary Care Provider Education and Community: We will focus on expanding the delivery of quality CME content, UofU "POTS and Beyond" Conference, by developing online streaming content, and producing clinical care-focused educational materials specifically for primary care providers. This will equip primary care providers with the resources they need when patients are referred back to them for autonomic disorders management by specialist. Develop PCARES.org for the delivery of CME education and resources. All benefit attendees will receive a future link through PCARES and be able to view the 2024 "POTS and Beyond" educational content.
Practice Solution: We are committed to ensuring the viability of primary care clinics, enabling them to effectively support their patients who suffer from autonomic disorders.
Procare Medical Non-profit is a 501(c)3 fiscal sponsor of the benefit, 100% of all donations are tax deductible and will be granted to PCARES. Other generous sponsors who have made this organization and benefit possible include the University of Utah Autonomic Neurology Clinic, Granger Medical Clinic, and Parsons Behle & Latimer.